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My partner developed ME/CFS after a COVID infection in 2023. They‘ve been sick for two years now, a year of that spent fully bed-bound. They spend all of their time in the dark, unable to do anything — including watch TV, listen to podcasts, play a video game. Even talking is often too much and must be kept to a minimum.
ME (myalgic encephalomyelitis) is no joke. It’s a post-viral illness that was historically activated via Epstein-Barr Virus (mono) or Lyme Disease, and has now been included as one of the possible forms of “long COVID”. ME has been described as “the living death” because of the way it destroys your quality of life but does not directly kill you. There is still no meaningful treatment and no cure, as many patients have been gaslit and told the illness is all in their heads. With a rise of cases after COVID, this illness has become harder to ignore.
This May 12th, take some time to learn about ME, its symptoms, the current lack of funding. Help raise awareness for this illness and discover how you can support those currently suffering from this illness. Link at the top for more info.
1d ago
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I’ve fallen ill and can never be cured
Mar 10, 2025
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I have a cold in my first week back at uni and I think my dear friend Ruben infected me orrrr I jinxed this illness onto myself after I said in the car with my boyfriend, “I don’t think I’ve gotten sick in a while!”
Anyway I’ve told everyone I know about this cold, how I’m rotting away in bed, cancelling plans left right and centre. I even complained to a lady at work as she sympathetically pat my shoulder.
My mum is constantly asking if I’m okay, my boyfriend came over at I think I infected him as well, the whole world knows I’m sick! And I’m making it your problem as well x
Mar 7, 2025
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I’m so fucking tired!!!!!!!
Apr 29, 2025
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I’m not a parent and do not plan to be. Kids can wear me out fast with their high energy and noise level; it leaves me very over-stimulated. But it’s pretty extreme when people say they ”hate kids” and I often feel it’s a reflection of their childhood and beliefs around how kids “should be.” That they were expected to be quiet, obedient, and out of the way by their parents when they were little.
It’s fucking hard to be a kid. You’re dealing with a rapidly-changing body and underdeveloped brain, managed by flawed adults who are enforcing boundaries that you do not understand. It’s confusing and hard to manage your feelings and honestly just a lot.
People are impatient with kids when they‘re brand new to the world and figuring it all out, and this is a time kids need a friend the most. Children can also be teachers to adults with how they are less habituated to the world. They teach us how to be free and open-hearted and silly and imaginative.
A good practice is to be kinder and gentler with kids. If that feels difficult, start with gentleness toward your inner child. Maybe that’s the child in your life that needs your attention and kindness most.
Apr 16, 2025
May 6, 2025
I meant to post this yesterday. Absolutely beautiful morning for walk.
This morning is also beautiful but in a spring rain kind of way.
Mar 23, 2025