an essay collection by Johanna Hedva that looks at the world through a chronic pain/disability activist lens. Incredible words & the audiobook was narrated by the author & their performance made it even better. A good book to cling to in the state of the world. reimagining what our world could look like through a reworking of what “care” is & could mean. it‘s a beautiful and honest collection that i will forever hold dear!
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Feb 28, 2025

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I mean first of all look at that cover. But second third fourth fifth sixth seventh and beyond - I have never read a book like this. Heady, tender, animated, fascinating, deeply sad, a strange hodge podge of fonversation and dreamlike occurrence. For anyone who needs to be reminded that it’s ok to be in chronic pain - especially chronic physical pain - and your way of coping is a heroic act. It is a part of you. Also hates on the ultra rich atheistic establishment in a way that rocks. This writer is so brilliant. We’re lucky to have her.
Mar 12, 2024
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i've never finished a book so fast in my life. she writes about life and grief in such an intimate way and i could honestly reread it forever. the opening lines are "Life changes fast. Life changes in the instant. You sit down to dinner and life as you know it ends." which, even on its own, is just wow
Apr 19, 2024
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This book is a chronicle of the author’s life in the year after her husband unexpectedly passes away while their daughter is in a coma. I also happened to read this at a time in my life when I had recently: a.) gotten married b.) learned a friend was dying Seems like a bummer from the summary above, and the content is definitely heavy, but this book really spoke to me at a time in my life when I was feeling a little lost amidst some big life changes. I recommend it to a lot of my friends after they get married - there’s some really great reflections on how amazing it is to share your life with someone, and the ways that you’ll miss them when they’re gone.  I’d always enjoyed reading, but this was the first time that I experienced one of those magical moments when a piece of literature, a movie, etc. can line up perfectly with your life and help you work through some of the things that are happening to and around you. 
Feb 20, 2025

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